NCT06927219
Research Accelerated by You Lupus Registry
Recruiting · Not specified · Lupus Foundation of America · registry updated 2026-01-23
Inclusion and exclusion lines below are quoted from ClinicalTrials.gov. No match score is shown, because a score needs a person's age, biomarkers, and treatment dates. Confirm the record with the study team.
Summary The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is a fully remote, longitudinal registry designed to collect data from adults and children living with lupus. The primary goal is to better understand the diagnosis, treatment, care, and quality of life for those affected by the disease. Remote Participation This is a decentralized, online-only registry. Participation is conducted entirely through a secure web-based portal. There are no physical site visits or travel requirements; participants can contribute from any location with internet access. Participation Details Consent: Informed consent is completed electronically. Surveys: Participants complete electronic surveys upon enrollment and every six months thereafter. Data Types: Collected data is self-reported and includes demographics, diagnosis history, treatment information, and patient-reported outcomes (PROs), such as quality of life. Purpose and Data Use The LFA uses registry data to: Address Constituent Needs: Inform programs and resources for the lupus community....
Inclusion
- For adults with lupus, the individual who completes the Registry:
- is 18 years of age or older
- has a self-reported diagnosis of lupus by a physician or health care provider
- is willing and able to provide informed consent
- is able to read and understand English sufficiently to complete the survey questions
- has access to a computer with an internet connection
Exclusion
- People who are not living with lupus